Monday, 16 May 2011

A Bit about my Illness.

Jules Real Clarke
****Jules shares this *****

How about: a virus most get rid of within weeks. And only a few dont get rid of. And it rages.
Its discovered, damage has been done.
Then the diagnosis messes your head due to possible death sentence.
Agressive drug treatments, internal organ damage, and a constant " are the drugs going to give up" thing.
And having damage enough that toxin buildups is ten times longer to rid than those without the thing, and they acknowledge a certain amount of damage to insides that they treat you as if next stage is present in order to try and stave off next stage, where cancer or renal failure is almost definite at some point but you dont know when or if it'll happen, and the big doubt that 6 sets of drug treatments didnt work, and the current one is working but last option.
If fails = Death. Fatigue, mental head issues the lot. <---they call that invisible. Thats been with me 10 years or thereabouts. And the damage also causes other symptomatic stuff to happen. <---Honesty from jules.
    • Jules Real Clarke This is what people dont understand with invisible illnesses.
      2 hours ago · 
    • Loraine Hardy Yeah I agree. Just because people can't see it, doesn't make it any less of an illness/disability.
      about an hour ago · 
    • Jules Real Clarke ‎>.< ouch sometimes loz.
      about an hour ago · 
    • Loraine Hardy 
      My auntie looks like everyone else to the naked eye, but she's registered blind, has marfans syndrome and an aortic aneurysm. She's had the interrogation from people about her blue badges in car parks, even when she got her guide dog people...See more
      about an hour ago · 
    • Jules Real Clarke When I get reflux, oesophagitus and duodenitus periodically as a sideline. Thats a "nasty" bit.
      8 minutes ago · 
    • Jules Real Clarke Hate the gastroscopy proceedures.
      8 minutes ago · 
    • Jules Real Clarke Also hate biopsies when they crash a nerve by the intrusion
      7 minutes ago · 
    • Jules Real Clarke The scans are painful cos they push a little bit hard.
      6 minutes ago · 
    • Jules Real Clarke Cancer checks every three or four months.
      about a minute ago · 
    • Jules Real Clarke Full blood tests often - feel like a pin cushion
      about a minute ago · 

1 comment:

  1. Since this post they worked out a bit of whats wrong with part of my guts. Its called symptomatic Sigmoid Diverticular Disease .