I.T inclusion? Widespread? Myth. Reality.

How the hell do i help the guy that sms'd me re needing computer cos its too fucking difficult without?

 Theres the netbook i could give, but their connection then becomes an issue.

I HATE positions like this.

 I've been admirably helped myself yet cant do it in return unless they already have a net connection .

 If had spare lappy could enable it ubuntu trouble free and fast, but then the connection issue causes me a pain in the arse cos its all ZERO money all round.

I know what people need but CANT do it.

And yet they ask.

There'll be many of you in same position as this.

 Its awful.

I suspect the request is due to Govt drive towards everything on line. I wrote about this on my blog a while back. Welcome to realisation. This will happen more.

Its ESA50 time......

Say Kids? What Time is it? OOOH ESA50 time!

I wish I could send them a picture similar to above. In fact, I might.
(for Visually Impared the picture is a comparison between healthy and non healthy colon) 

Theres pain in my bowels regularly, very regularly.

AND I HAVE TO explain that to complete unknown strangers.

How i walk when it hurts , when i lose control, how infections occur, complications, limitations etc.

Cross relations antibiotics with other tablets, risks and threats to further heath, knock on issues etc etc.

. IT'S complete bowelux in the head. (see the pun?)

The NON bowel thing is also having to be explained. The thing is ...... Just writing down *the thing* DOes not guarantee understanding.

I've said this MANY MANY times. The WCA is NOT a medical assessment. If so the disclosure of detail you must jump through and disclose would NOT be necessary. Stating the disease or ill would be sufficient.

________________________________________________________________________

(for Visually Impared, its a picture of Play School from childrens television)

Its play school drs and nurses. And its , yet again, doing my head in. (which , by the way I have to also explain Depression. To a supposed medical service)
_______________________________________________________________________


Yep its ESA50 syndrome time again where my levels of stress are elevated, and im angry,


And if that happens sometimes its MUSIC time:

Housing Conundrums - very difficult area.

I enjoyed a chat with Frances on this, and commented as this: 



If you build housing for social benefit without right to buy, this will boost areas, local economies, employment, and national benefits ensue. This is ideologically impossible if you believe assets for profits is the only valid model. Both can exist. As Frances points out the least damaging is a social housing expansion. The damage is even LESS if RTB is removed. 
The equalisation of entry into home occupancy would be improved, as social homes would be available. 
The remaining issue would be the concept of housing as an appreciating asset for disposal later at a vast profit. This has been the main housing and economic problem. Housing bubbles burst, mortgage markets fail, all sorts of cascades hit. This is what needs looking at in a brand new manner. 
Hard to discount constructed reductions in house prices, but this , i agree would be slowed by a major investment in social housing. 
I hope this makes sense. 

Heres Frances Coppola on the subject and what we were talking about: 

http://coppolacomment.blogspot.co.uk/2013/05/the-housing-conundrum.html

And now 

Age Restricted Properties in 2013 causing problems without justification

I'm Collating Situations here where age restrictions are getting in the way of Housing need.
________________________________________________________________

Hi Jules,

I've had problems with two 1 bed flats being age restricted so far.  The company that runs the bidding site has removed the restriction because of my disability, but it has been the actual Housing Associations who have denied me permission to continue with the bids.

In the first instance, the most suitable, I was informed that the HA were advertising on behalf of a management company, and it was these that were being strict on the 55 and over rule.  This flat is now up for bids for a 4th time and has been empty for a couple of months from what I understand.  It's ridiculous.

The second flat was not ideal, but it was my own HA's property and they denied me permission to bid on it.

My wife and I are finding that many of the properties we're allowed to bid on are simply not suitable for us or have an age restriction, and these problems have made us reluctant to bid on them.

I am going to speak to my newly elected County Councillor, Azhar Ali, on Monday, as well as the leader of Pendle Borough Council, Joe Cooney, with regards to this.  Unfortunately my local MP, Andrew Stephenson, believes completely in the Bedroom Tax and has been of very little assistance.  I am, however, hoping to speak to him on these age restrictions - I'll let you know if he responds.

If I can provide any further help, please let me know.

Best wishes,

Wayne

***

Hi Jules,

OK. I’m currently living in a bungalow in Hertsmere, in SW Hertfordshire. They’re designated for >60s and disabled people, which is fine, but they’re extremely small and it’s impossible to use a wheelchair inside.

I have recently decided to move home to Scotland. As I have a progressive condition and I’m not that far off needing to use a wheelchair indoors, I applied for sheltered housing. The designation was “Over 60, or younger where the person could benefit from sheltered housing”. When I got the letter back with my points etc, I phoned up to enquire about how it would all work. That was when I was told that if anyone over 60 applied for a property (disabled or not), I wouldn’t get it.

As I said on Twitter – clearly if you’re under 60, you’re not allowed to be disabled!

Margo

SNAPSHOT Of Luxury on the Sick

Theres a *gala* i shoulda gone to but couldnt make it. Grrrr. I was invited. Couldnt make it.

Ive said many times before

" Withdrawal and isolation is a by product of being on one of the lowest welfare payments in europe.

People stop inviting you to stuff as you cant afford it yourself

OR Those that do invite you regularly get a no . Its a destructive cycle. "




Thats not what the media portray. And they create false images in others minds . Its not LUXURY on the sick at all.







The Gala are now eating THIS CURRY.

My view on Age Restrictions on Adapted Homes

Social Housing : 
My view on Age Restrictions on Adapted Homes

Ever feel "AAAAARGH"?

It seems lots of people I deal with/ speak to have adaptations issues and obtaining either the adaptations or an adapted home. 

*Regarding obtaining adapted home*: 

Lots of Places have adapted homes age limits. This is a common thing. 

However, i know of situations where the restrictive rules can be adapted , e.g in hard to let areas, or by appealing to housing management for special case, as most policies have the ability of exceptions by invoking the right to a home. 

THATS THE THING REALLY getting the recognition and visibility. 

The main way that age limits can get changed in individual cases is by housing officers/ managers proactively presenting the case of the housing applicant. 

This could also involve agreement of the housing occupiers within the age restricted area. 

In my view a presentation is of lifestyle not being disruptive or distressing to existing demographic. Also a proof that other places ARENT available any time soon.

There is no guarantee that age restrictions can be changed, but i'd suggest if needed get your councillors on board enhancing your visibility of search, and giving greater kudos to your occupancy intent. This may not make total sense. But is my thoughts on sometimes a very difficult situation. Because often there are few or zero adapted homes outside the age restricted properties. This is something that matters to me, as "vunerable" or "in need" is the same whatever the age, surely. 

Suggested CV - Mine.

I could *could* work from home. No one believes my adaptability to running stuff with adequate info provided. With own decision, Making and moving stuff forward. I can do more than a lot, i can do huge stuff. Now if you wanna chat about how... i dont mind a chat here. I'm fed up of the system. Oh , i cant give you 24/7 I can give you 24 in 7 and the times i engage are probably 50x more than three weeks of shit that you currently employ . Sorry for the tirade. But hey this govt say we, and me, are scroungers. talk if you have a prop for me. If not ? Then I cant help you working for you in a senior role. Brief me. I'll engage. Oh remember i'm ill and it wont be "on stream" commitment. It will be total, in available windows. And hey, better than some of the full timers. And if i work at home, sheesh you overcome all the reasons for nor being at "place of" work which may weld me to necessary heath issues. And out of hours isnt a problem. cos you want 50 hrs? i'll give you 60. But dont tell me when, it will be as opportune as i can do, FLEXITIME with a promise of delivery. Can I say there may be a whole day missing. I will catch up. There may be hospital prep for 4 days. I will catch up. If you see my KNOWLEDGE and ability you will employ me. If i crash and hand over an awesome brief to you, then ive done my duty. If you see Ill Person with a chronic couple of things you probably wont employ me..


If you dont employ me ......... Destitution under the govt you prop up

Sonia Poulton On Welfare Reforms

Where have all the emails gone?

There was a time, oh way back when, when emails never existed.

Some of you wont remember that.

But as they are here, they are VERY useful to brief feelings and info to people you may not get to have other access old school style.

That is the beauty of the email. The invitation to share.

Where there was no share before.

Am i being histrionic in my favouring email as a focus in this blog?

I dont think so.

Theres a govt introduced system called E-Petition...... which is VERY VALID.

I do remember the time before that when ONE email could change a whole process by its relevancy.
I do remember emails QUOTED in parliamentary debates i watched.

The age of the e-petition is welcomed.

But there is a personal briefing to anyone you want to talk to getting rapidly forgotten, before people realised how important it could be.

Now remember, the GOVT introduced e-petitions. As people were waking to the power of briefing people via email. And thats nrather fallen back as a tool, but has been observed, and advised to me, as probably the most effective method of communicating feeling, objection etc.

Oh yes, you get the STANDARD email back . Thats been said to me many times.

It takes one email to hit a spot, as opposed to 100k sigs on a petition to then be considered for debate.

I remind people here emails are not the dodo you think they may be.

However, I do support ONE e-petition at the moment. As it is taking a multilayered approach.

I wish, with this post that you see the link above, click and sign that e-petition.

But where have all the emails gone?

Govt Wait and See attitude not good enough.

If understanding the umbrella and cascade of effects is possible then implementers of policy teams SHOULD be able to produce assessment reports, no matter how complex they state, its a hive, a set of complexities - with a combined framework. I do not believe an impact assessment based on Wowpetion request is unachievable.

My view of knock- ons rather than individual impacts included here:

The side people dont really think about with taking an existing welfare payments system away: The multiplier from welfare injection (payment) is beneficial- welfare is an investment return being re-invested (spent) by recipients into the circular flow of economic activity, and mostly prepaid by recipients anyway through contributions (which are syphoned, invested and used by the govt as a provision for that safety net). (Theory at least- the basic premise of National Insurance in the uK) Take that investment (payment/ income) away from high propensity to spend recipients, multiplier (circular flow benefit to economy) is gone and economy suffers exponentially.
The closed mind of fiscal only economics does not mitigate for this and can have catastrophic effect on localities, regions and indeed a nation.
So "within a tiny box" thinking... is NOT a socially valid concept.
ignoring circular flow modelling is one of the worst closed mind ideologies in economics in my own humble view.

I hope you dont mind the thought. I see it as real.

The Govt Response here to WowPetition ...

As this e-petition has received more than 10 000 signatures, the relevant Government department have provided the following response:

Cumulative impact analysis is not being withheld – it is very difficult to do accurately and external organisations have not produced this either. (Edit:*see note below)

The Government is limited in what cumulative analysis is possible because of the complexity of the modelling required and the amount of detailed information on individuals and families that is required to estimate the interactions of a number of different policy changes. In addition, the Government's programme of welfare reform will not be fully implemented until 2017/18 and many policy details are still to be worked through. Equality Impact Assessments are however carried out for individual policies where there is a requirement.

No other organisation produces this analysis in a robust way. The Treasury does publish some cumulative analysis with each Budget but this is a broad brush assessment of all tax, benefit and expenditure changes since 2010 across households. Because the Budget cumulative analysis is so complex, it is not robust enough to break down by family type – so impacts on disabled people cannot be shown separately.

The IFS also produces some cumulative analysis but also do not feel the results are reliable enough to disaggregate for the disabled.

This e-petition will remain open to signatures until the published closing date and will be considered for debate by the Backbench Business Committee should it pass the 100 000 signature threshold.

___________________

*Note :  Scope/Demos HAVE done their view of a cumulative assessment. 

Anon writer Questions Is WCA at home thorough enough ?

The writer below is waiting for decision. Hope its not like the cartoon above. 

_____________________________________________________________________

Explaining an invisible illness to someone isn't easy at the best of times. When you suffer from a mental health condition, it can be difficult and traumatic to translate the troublesome thoughts and feelings running through your head into words. People tend to be alarmed by behaviour and ideas that they can't relate to themselves and you soon learn that it's probably better to keep your personal horrors hidden from your friends and family and make up more acceptable excuses for yourself when you don't feel well. Mental health professionals generally know that people feel stigmatised and frightened to open up. That they're scared of speaking out because it can be confusing and upsetting and there are no simple solutions. They tread carefully at first on tip-toes around you. Little by little they build a professional relationship based upon the solid foundations of your trust. A good therapist offers a sensitive ear to your troubles and waits patiently until you feel stable, comfortable and ready to share your inner depths. They listen and put you at your ease....

...which is far from the reality of the work capability assessment. The face-to-face assessment has all the sensitivity of a blunt lump hammer bashed against your skull to knock the answers they demand right out of you with thumping great whacks. No moment is given to recover from your upset here my friends. Your time is their money.

The face-to-face assessment was scheduled to be done at my home because of the nature of my illness. It was a huge relief that they had accepted and believed my difficulties demanded it. My last assessment was just twelve months ago and despite having a long-term history of chronic anxiety conditions, more therapy than Ruby Wax (not possible) and a poor prognosis, following a fit to work decision and a battle, I was placed in the work related activity group. Thank the Holy Lord and mother nature herself that no one from the jobcentre has ever contacted me. I could not have coped if they had.

The Atos health care professional was not the person named on the letter. When he arrived my heart sank. It was the same man as last time. The same man who twisted and manipulated my answers and wrote a work of fiction about me on his report. I hadn't been expecting a fair or reasonable assessment however. At least this time I knew not to trust. I had been dreading it. Effectively two months had been wiped from my life with worry and stress. I couldn't think of anything else. The apprehension grabs you by the guts and twists them until you're curled up in a quivering foetal ball. I could barely function for fear of what was going to happen next. Suffice to say the night before sleep had eluded me. By the time he arrived in the morning I was ragged and a little bit delirious.

Ten whole minutes of rapid fire questions followed. Barely time to catch my breath, yet alone my composure, which crumbled when he asked me to describe a panic attack. Despite enduring possibly thousands of panic attacks, right there and then under this pressure my mind was a blank vacuum of emptiness. I just couldn't think and hot tears swelled in my eyes so I had to cover my face with my hands. My thoughts dried up, my throat constricted, my voice cracked and words would not come. He was perched on the end of the settee tapping his pen. I noticed him turn his wrist to look at his watch.

"Did I take medication?" I shook my head and told him, no. His scribbled with his pen and I hastily added that I didn't take medication because the side effects had been intolerable and in the past had made my condition significantly worse. I noticed that the pen didn't write this clarification down on paper.

"Did I ring the doctors myself?" I had to think for a moment, "sometimes" I said. I'm familiar with my GPs surgery and it's probably the one place on this earth that I'm not too afraid to ring. Had he asked if I rang the hairdressers, or the dentists, or the DWP, I would have said no, never, because I am too anxious.

"Do I go there by myself?" I do yes, because it's literally around the corner, takes less than a minute to reach by car and you can park right outside the door. "So you walk to the doctors yourself?" he enquired and started to write the answer down before I had started to speak. "No! I am taken there!" because I can't walk that far without panicking. Once again, his pen lay still in his hand.

Two sheets of A4 paper were completed, and with that he opened his briefcase, placed the forms inside and clipped it shut. He said that I didn't need to see him out, and with that, he was through the door and gone, leaving me huddled on the chair feeling stunned and bewildered, as if I'd just been violated in some way. It was over so quickly I didn't really know what to feel. Certainly I was relieved that it was done and dusted, but if that was a credible and fair assessment to reflect a fifteen year history of a crippling mental health condition, I am very worried. I have no idea if he's read my detailed forms and the assessment was a mere formality, or if he's made up his mind already to find me fit to work.

Once the dreaded (white) envelope of doom arrives, you have exactly four weeks from the date it was issued to complete and return the ESA50 forms contained inside. What these forms fail to mention is that for each question you complete, you will awarded a set amount of points from zero to fifteen. You need at least 15 to "pass". However which way you finally get to the stage where you're given the benefit you are legally entitled to, be that as a direct result of the assessment, by a reconsideration of a fit to work decision, or at an independent tribunal, it is extremely disconcerting to feel that you have succeeded in "passing the exam" because someone with no medical training acknowledged the severity of your illness. It really does feel as if your illness is on trial.

How Atos will interpret your answers is something of a mystery. The questions are vague and ambiguous and perhaps in the majority of cases, bear no relation to the real life limitations to work your condition poses. People who are mostly housebound and need someone to support them to go outside cannot score enough points on that particular activity to be awarded the benefit. People who are not aggressive or violent every day, but only some days, cannot score enough points to be awarded the benefit. Okay, so there is a clause which states that if work will cause you or others harm there is some discretion in the decision making process. The problem in reality, is proving to them that is the case. In order to try and understand what was actually being asked of me, it took me almost the whole month to complete the few answers I believe might possibly be relevant to my mental health condition. It is a miserable experience, and utterly demoralising and soul destroying to have to go over and over the very worst aspects of your ill health. By the end of the process you're emotionally battered and more unwell than when you started.

Mark Hoban, the minister for Work and Pensions would have you think the reason why at least 40% of fit to work decisions are overturned at appeal is because additional medical evidence was presented to back up the claims. I challenge the minister to obtain his medical history within this narrow time frame and see if he can do it without having to pay. The maximum your GP surgery can charge for copying your medical records is £50, which is precisely the sum that I was charged. I contacted the GP surgery the day I received the forms. I was told to put my request in writing. That letter was delivered to them within hours. It took six weeks to get hold of some of the documents, but they had missed off everything from 2005 to date. That afternoon, I confess, I cried.

I hope that the clerk at the DWP who makes the final decision does read the two inches thick paper documentation to support my claim. Frankly, I couldn't flip a coin one way or the other to tell you what their decision will be. The major problem with the work capability assessment is that the outcome is so completely uncertain. People keep telling me that they have their fingers crossed. Some have their toes crossed for me too. Isn't that the point after all? No one can second guess what the decision will be. It's a test based not on facts, or evidence. It's more a game of chance which gambles with your sanity and your desperate need for support and a subsistence income. I wait anxiously to learn if they pull my ticket out of their tombola machine. Wish me luck?

Anon. 

The Personal Aspects of the ESA50

I tried to write something on the ESA50 stress. 

I wouldve probably talked technical and descriptors and deception, trickery and probably got a bit too tied in my own emotions last time i filled mine out. I'm due another one soon. But Vanessa said she was writing something on the problems with the ESA50 and I said yep, THAT would be the blog piece i was planning... So here it is ,

Thanks to Vanessa Teal for this ... 
_________________________

Ever felt like this? 

What's the Problem with the ESA50?

If you know anyone with a physical or mental illness or disability you will eventually hear them talking about filling in an ESA50 and how much of a struggle it is. The ESA50 is the first step in claiming or renewing your claim for Employment Support Allowance, the benefit for people too ill or disabled to work.  Its it the first stage in deciding whether someone is 'fit for work'. Everyone who fills this form in finds the experience damaging and people who have never had to fill in a form like this can find this difficult to understand.

Most of us with illnesses and disabilities have our own coping strategies and one of the main ones is mindset. We focus on the positives, on the things we can still do, on the good things in our lives however meagre or simple. Although we're very aware of our limitations we don't spend long periods focusing on them - that's a recipe for despair and hopelessness.

The form entails explaining in intimate detail just how pathetic, inadequate and completely useless you are and how limited, humiliating and basically worthless your life is. (I can hear clamours of disagreement and people rushing to tell me this isn't the case but that's how the form makes you feel.) Its a form which takes days or weeks to fill in completely rather than minutes or hours. If you have problems with writing or typing or if your cognitive ability is impaired it takes even longer.  That's a long time to focus intently on the negatives and even when you're not actually filling it in you're thinking about it, worrying about it, dwelling on it. The stress permeates everything.

Its a process which makes you think about the future and that's a problem in itself. For anyone with an illness or disability in the current climate of austerity the future is frightening and uncertain. We try not to dwell on it too much, taking one day at a time, living life in manageable chunks. This form reminds us that we're not likely to find a job anytime soon (if ever), that we're totally dependent on a benefit system which regards us as cheats and scroungers. It reminds us how precarious our existence is.

As you fill it in you can't help but think about what happens next. The demeaning and humiliating Work Capability Assessment where an 'Atos Healthcare Professional' who may know next to nothing about your condition tries to prove that you're lying. The report which that Healthcare Professional and a tick box computer system prepares - which may be accurate or may be a complete fabrication. The wait for the DWP envelope which contains your fate. The possibility that the money you rely on to live will be cut off at a stroke leaving you to face the nightmare of the appeals process. Or, if you can't face the appeal, to sink or swim on Job Seekers Allowance, facing never-ending financial  sanctions for being too sick to jump through the necessary hoops.

The final cruelty of the ESA50 is that it comes in an innocuous looking white envelope. The form which will render useless your coping strategies, strip away your dignity and hope and put your future life in jeopardy sneaks into your home quietly and unannounced.
 Just like all the best assassins.

_________________________________

Mine, last one, took me a week to fill in. I had a bit of a heads up after helping a few others with theirs. 

Its a severely punishing exercise to complete. 

The MYTH of Luxury on the sick

I post stuff occasionally on twitter with the hashtag #luxuryonthesick BECAUSE IT ISNT. 


Do your benefits provide minimally acceptable standard of living? NO , mine dont

Have a look , its not just my belief, Click and see ... These are figures for 2012 ...


Click this ...
Joseph Rowntree Foundation

Smoking Guns and Kharma

An excellent Blog piece i read from Sue Marsh.

Lies entrenched.

Promises broken.

Solidly, consistently, draconian, blatent.

Personally Sue writes better than me on stuff, so heres the link

http://diaryofabenefitscrounger.blogspot.co.uk/2013/03/the-smoking-gun-that-shows-tories-lied.html


                                                Dear Tories...

Yeah

Dog sleeping

Many Thanks

Jules

Housing Act V Bedroom Tax - UPDATED BLOG

Following the conversation below, I've included it here. The doc from Orbit is misleading and gives false hope.

Conversation between me and a Housing Professional 

Jules, the 1985 hsing act has been overriden by the 2004 

amendments

That info is wrong

Okay so Orbit Housing are wrong then?

If your TA says 3 beds, no matter the size you pay for 3

beds.

Unless the HA  reclassifies the property it is irrelevant

So the room size thing that says 50sqft under 1yr, 50-70 up to 10 etc ALL gone?

it's a single bedroom as defined by the housing provider.

It can be taken up and challenged legally, but right now it's a false hope

--------------------

So the guide orbit has circulated is incorrect.

--------------------

This worth reading and hanging on to

http://nearlylegal.co.uk/blog/2013/02/room-without-review-thoughts-on-tackling-the-bedroom-tax/

Unless the HA reclassify a 3 bed as a 2 bed, if the 

tenancy agreement states 3 bed, it's a 3 bed for hb purposes

Thought so but the bods at Orbit issued it out to their staff to remove boxroom myth flying on FB

If they ((GOVT)) agreed to the room dimension argument 

HA's would have decades of charged rent to pay back and HB would need to claim it back

.. that wont happen

where's the link?..to orbit

Hold on... take a couple of minutes...

Theyre on twitter as @orbitheart

I rt'd their thingy earlier extracted their staff guide from their link, Is in my timeline somewhere.

HERE..

OrbitHeartOfEngland @OrbitHeart

We have produced a staff briefing to help dispel the 'boxroom myth' which has started circulating on Facebook... ow.ly/injKN

There's nothing on their leaflet about boxrooms, and they refer to the room size theory as a 'myth'

Yes and the blog is the copied two page leaflet

There is absolutely nothing about room dimensions making people exempt. The Tenancy agreement signed is whats applicable.

Yes thats what i thought, and I think their guide says how

the BEDROOM tax will be applied?

The TA is the legally binding contract and the info 

provided on it. ... as written by the govt.

I'll edit blog

Best do. The sooner that myth dies a death the better. 

It's giving people false hope.

okay

-----------------------------This is what we were talking about ---------