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Friday, 1 November 2013

Disability doesn't discriminate




This a guest blog from Jane. ... 

How often have I said "Disability doesn't discriminate"?

Some of you know I have been terribly upset and worried this week because my sister has been unwell and in hospital. Thank you for your support through this, frankly it's been awful and without my family, friends and "virtual" friends I don't know how I'd have coped. We've been waiting for the diagnosis, it's come.

Let me start at the beginning.
My sister is healthy, has decided to take early retirement from the #DWP (yes, stop booing) because of the tremendous stress she is under. So with just one year to go she decided to bring to an end nearly 30 years of work for the DWP. My sister was really looking forward to finishing because she has a new grandson,her first, just 8 weeks old. My sister already has a swimming session booked in with him, has changed her car to accommodate all the paraphernalia that goes with having a baby these days. My sister was looking forward to the retirement she and her husband have worked hard for. The round Europe in a camper van type holiday. The round the world trip etc etc.

So. My sister was getting ready to board a plane for Vietnam on Wedsnesday. She "fell" - she cracked her head open and has four staples in it. She started to "fit" - she had eight "episodes" in an hour and continued to have episodes every hour or so, she still is. I knew immediately from what she said that it was Epilepsy, however the hospital have done many, many tests - a lumber puncture, taken bloods, monitored her for 24 hours, a CT scan etc etc (thank god for our #nhs), all this time she has been losing consciousness, at one time the crash team were called and my brother in law stood by thinking he was about to lose his wife. Finally today at 6pm, the consultant came, finally today the diagnosis came...."you have epilepsy". Let me tell you being at the receiving end of that statement is horrendous. The clock stops. Time stops. Then it hits you. The enormity of that diagnosis.
The enormity for my sister. She won't be able to drive her new car to pick up her new grandson. She won't be able to go swimming with him (on her own), she won't be able to ride her scooter round Europe..... the ramifications are enormous.

So. My oft spoken & written words "disability doesn't discriminate" are proven true again. It didn't discriminate against me, it didn't discriminate against my sister.

What if it doesn't discriminate against you? What if your comfortable lifestyle is all of a sudden hit by disability? Maybe you'll realise then that you should have signed http://wowpetition.com ......

I'm not writing this to make mileage from my sister, or to make a dramatic difference to the signatures, I'm writing this to show you it happens, it really does happen. There are for of us, four siblings. Two have diabetes, two have epilepsy. What are the odds of that happening?

Please protect your future and the futures of those you love, sh*t happens - believe me, it does, and when the sh*t hits the fan wouldn't you like to think the state will be there to provide for you? Think again!!

Please sign & share http://wowpetition.com NOW, TODAY!

There are just 40 days till the petition closes. 40 days for us to make a fairer, better, safer future for all of us.

My sister is aware I am writing this and fully supports me with all I and all the WOWteam, followers and supporters are doing to make #WOWpetition a success. In fact just 2 weeks ago, to help me in my "traipsing" around the country for WOW, trying to raise awareness and signatures, my sister drove me to Bangor so I could help @TenPercent. Most of my family have met Rick. All my family support#WOWpetition. All of my family know the urgency to succeed and the need/importance to sign http://wowpetition.com ......because all of my family know DISABILITY DOESN'T DISCRIMINATE .......

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